The Girl With Hamburger Bun Eyes

My son is absolutely beautiful.  He just had a growth spurt.  He’s stringing more words together than ever.  He has Williams Syndrome.  He’s such a joy. The other day he was smiling and touching my eyes.  “Mommy’s eyes,” he said.  His face lit up as he thought about one of his favorite things.  “Hamburger buns.  Mommy’s hamburger bun eyes.” There … Read More

So The Police Show Up With My Eight-Year-Old Son…

Sounds like a bad joke, right?  Only it isn’t.  Through a series of miscommunications and things that would be heartbreakingly comic if I was watching it on TV, my son ended up freaking out on the school bus.  So much so that the school police were called.  My car had mysteriously died this morning, my baby hadn’t slept all day and … Read More

Guest Post: “Why I Hate The ‘R’ Word” by N. Paslay

Let me introduce you to my writer friend and fellow Williams Syndrome mother, N. Paslay. She wrote an essay that struck deep into my heart. I’m grateful that she allowed me permission to share her words here. I cringe whenever I hear this word, precisely for the reasons that she so eloquently states. Please, let’s realizes there are consequences to … Read More

Today’s Thoughts on Williams Syndrome

Small Son’s test results came back, and his calcium is elevated.  Once upon a time this happened to us, and he descended into kidney failure because of it.  We’re hoping it can be changed with diet instead of drugs, and I’m keeping a diary of everything that he puts into his mouth.  It isn’t much. Today he was supposed to … Read More

The Specialist

First off, I want to say thanks for all of your well wishes.  I really appreciate that.  I don’t think you can know how much it means.  🙂 So!  News!  I need to tell you that my son has out-of-this-world anxiety when it comes to anything medical.  He has been through more procedures than I can even knew existed, and … Read More