Once upon a time, an angry, tiny baby was born. He was sweet and cried constantly and shredded his tender little face with his fingers. We put socks on his hands and, with doctor’s permission, duct-taped them to the sleeves of his onesie so protect his skin. Apparently it’s fine to do so if the tape never touches their skin, … Read More
An Introduction to Williams Syndrome
The Williams Syndrome Association put out a wonderful video that touches on some of the main points of Williams Syndrome. I know so many of the beautiful faces in this video, and it fills me with joy. When my son was first diagnosed with WS, we weren’t in contact with anybody else who had it, and felt horrifically alone. (I … Read More