Miss Murder’s Easy Fruit Bites

“Mooooooo-ooooom, I want a treat but we don’t have anything.” Or “Let’s bake a pie, but that will take a million years!” Or “It’s too hot to have the oven on for very long, but piiiiiiiie.” I have it covered. This is a go-to treat that whips up quickly, is super easy, and still manages to taste decadent. Better yet, … Read More

Fairy Gardens

Tonight I was in charge of eleven little girls for an activity. First we gathered around and I read them Sleeping Beauty, with twelve good fairies and one evil one. Then we made fairy gardens. We filled mason jars with some fresh earth, fake plants, and magical creatures. Fairies, princesses, and mermaids live in their new enchanted homes. It’s such … Read More

A Different Kind of Christmas Present

Niko, my darling boy, is 13 this year. He has Williams Syndrome, and like a lot of kiddos with WS, he’s difficult to buy for. One year he asked for an escalator, and Santa pulled a few tricks out of his bag for that one. He doesn’t attach to typical things, generally. He doesn’t particularly care about gifts, and that … Read More

A Kinder, Gentler First Aid Kit

I’ve told you about the Frontier Girls, which is similar to the Girl Scouts. Both of my daughters participate and they love it! I can’t say enough about our leader, who takes my breath away. She’s Wonder Woman. They had a first aid day on Saturday, spending four hours learning things like CPR, etc. One of the requirements is to … Read More

A Veterans Day Bus Ride

My son Niko, who has Williams Syndrome, has a few fixations, Washers and dryers, for example. Listening to the same song over and over. Hotels and buses. About six months ago, we promised we’d go on a public bus in November. He’s been looking forward to it for months, and has asked about it several times every day. (Anybody familiar … Read More

Frontier Girls and Williams Syndrome

My daughters are members of Frontier Girls, which is similar to Girl Scouts. They earn badges, do activities, and apparently surprise their mother. This summer Niko and I came to two meetings and taught the girls about Williams Syndrome. We shared this short video.  We talked about several of the WS characteristics. The girls asked Niko and I questions. It … Read More

Feed The Birds: A Quick Craft for Kids

I wanted a few activities for the kids to do besides watching Godzilla: The Original Animated Series, so we made bird feeders this evening. Cute. Sweet. Best of all? They were very, very easy. We took some small pine cones, birdseed, peanut butter, and yarn. Tiny Daughter spread peanut butter on the pine cones. I managed to pull her hair … Read More

A Typical Day Living with Williams Syndrome

This photo breaks my heart and makes me smile at the same time. It stirs up emotion. This is my beautiful, guileless son, who has Williams Syndrome. He’s crying in the bathtub after I told him his behavior wasn’t up to par and he wouldn’t earn a trip to McDonalds unless he improved. His emotions are always so close to … Read More

Discussing Williams Syndrome with Sarah Chorn

I introduced you to Sarah Chorn a while ago. She wrote a stunning review for Pretty Little Dead Girls that just touched my heart. But she’s done even more than that! Sarah interviewed me for her wonderful column Special Needs in Strange Worlds, which runs in the SF Signal Magazine. Sarah’s column helps raise awareness for not only diversity in … Read More

May is Williams Syndrome Awareness Month

Most of you are familiar with the fact that my 11 year old son has Williams Syndrome. It’s an exceptionally intricate genetic syndrome that affects so many things about him. His heart. His mental capabilities. He’s going to middle school next year and he doesn’t have the dexterity to manipulate a button. But he loves. Oh, how he loves! I … Read More