The Williams Syndrome Association put out a wonderful video that touches on some of the main points of Williams Syndrome. I know so many of the beautiful faces in this video, and it fills me with joy. When my son was first diagnosed with WS, we weren’t in contact with anybody else who had it, and felt horrifically alone. (I … Read More
Christmas Gifts for Children with Special Needs
What does Juan want? What does he really want, not “what do I think Juan should want?”
The One Year Anniversary of the Las Vegas Shooting
I’ve been unsettled all week and I couldn’t put my finger on it. Then my Facebook memories showed me a picture of my husband, daughter, and I at the Imagine Dragons concert downtown. My body went cold, then hot. I started to panic. I couldn’t breathe. My heart was beating too hard, too fast, and irregularly. Two days before the … Read More
Preparing Your Child with Special Needs for School
This is an old blog post and Niko is now in high school, but it’s still relevant. As school time rolls around, there are always things we can do to help the transitions become easier. Happy school year! I can’t tell you the tears, both his and mine, that have ensued because of new schools. This is my darling Niko. … Read More
Happy Scorpion Anniversary!
It’s a year to the day since I was stung by a scorpion while doing dishes. A lot has happened since then. Today Miss Murder seeks her revenge. To celebrate, I made a Youtube video. Happy Scorpionversary!
Print Date for Little Dead Red!
The publisher assured me that Little Dead Red and Other Stories will be printed by June 29. That’s this week, you guys! That’s this very week! I have a very scary sedation appointment for my sweet son the day before (Williams Syndrome/autism make everything difficult) so holding this hot little number in my hands will make it all worth it. … Read More
Join Us for the #VegasStrong Book Signing!
Do you remember where you were during the mass shooting as Las Vegas? I do. A week before that, we had taken my 10-year-old down to that area for a concert. The morning of the shooting, I was in that area with my parents. I was participating in a book reading and it was their first time watching me. They … Read More
Covering Hate With Love
This is something that happened last year, but I came across these pictures and wanted to share it. I find it more timely than ever. This is hateful graffiti that was left at my children’s elementary school. Yes, I know the original origins and meaning behind this symbol, but I think it’s a safe bet that when you see it … Read More
Miss Murder’s Black Philip Eye.
So this strange eye thing happened a few months ago. And it has changed everything. You might remember that I was nearly killed in July by a scorpion sting. Since then, I’ve had a few difficulties getting back on my feet. Nerve damage, twinges, mental fog, etc. It laid me pretty flat and it’s taken me quite a bit of … Read More