Martin Lastrapes Interviews Me About Arterial Bloom. And Meet Niko!

What are you doing during quarantine? Why not listen to this super cool interview with Martin Lastrapes?  Martin is an author /podcaster/all-around-character that lives here in Vegas. We were originally going to do the interview face-to-face, but then life and a global pandemic happened. We talk quarantine, Arterial Bloom, and my son bursts onto the scene at about the hour and … Read More

Our ISP (Individualized Support Plan) for Niko. Gah.

We had an ISP for Niko today. An ISP is an Individualized  Support Plan or Individualized Services Plan. In short, we’re opening a case file for Niko so we can have support when he transitions out of high school. We want him to be able to contribute to society and engage with those around him, but we need help facilitating … Read More

Christmas Gifts for Children with Special Needs

This is a toughie. It can be downright hard, because there are so many emotions tied up with the holidays. We have expectations. Christmas is supposed to be a time where we express our love and gifts are a way we do that. What if the child, who has special needs, doesn’t like their gift? What if they don’t play … Read More

An Introduction to Williams Syndrome

The Williams Syndrome Association put out a wonderful video that touches on some of the main points of Williams Syndrome. I know so many of the beautiful faces in this video, and it fills me with joy. When my son was first diagnosed with WS, we weren’t in contact with anybody else who had it, and felt horrifically alone. (I … Read More

Preparing Your Child with Special Needs for School

This is an old blog post and Niko is now in high school, but it’s still relevant. As school time rolls around, there are always things we can do to help the transitions become easier. Happy school year!  I can’t tell you the tears, both his and mine, that have ensued because of new schools. This is my darling Niko. … Read More

Print Date for Little Dead Red!

The publisher assured me that Little Dead Red and Other Stories will be printed by June 29. That’s this week, you guys! That’s this very week! I have a very scary sedation appointment for my sweet son the day before (Williams Syndrome/autism make everything difficult) so holding this hot little number in my hands will make it all worth it. … Read More

Christmas Gifts for Children with Special Needs

This is a toughie. It can be downright hard, because there are so many emotions tied up with the holidays. We have expectations. Christmas is supposed to be a time where we express our love and gifts are a way we do that. What if the child, who has special needs, doesn’t like their gift? What if they don’t play … Read More