Our ISP (Individualized Support Plan) for Niko. Gah.

We had an ISP for Niko today. An ISP is an Individualized  Support Plan or Individualized Services Plan. In short, we’re opening a case file for Niko so we can have support when he transitions out of high school. We want him to be able to contribute to society and engage with those around him, but we need help facilitating … Read More

Christmas Gifts for Children with Special Needs

This is a toughie. It can be downright hard, because there are so many emotions tied up with the holidays. We have expectations. Christmas is supposed to be a time where we express our love and gifts are a way we do that. What if the child, who has special needs, doesn’t like their gift? What if they don’t play … Read More

An Introduction to Williams Syndrome

The Williams Syndrome Association put out a wonderful video that touches on some of the main points of Williams Syndrome. I know so many of the beautiful faces in this video, and it fills me with joy. When my son was first diagnosed with WS, we weren’t in contact with anybody else who had it, and felt horrifically alone. (I … Read More

Preparing Your Child with Special Needs for School

This is an old blog post and Niko is now in high school, but it’s still relevant. As school time rolls around, there are always things we can do to help the transitions become easier. Happy school year!  I can’t tell you the tears, both his and mine, that have ensued because of new schools. This is my darling Niko. … Read More

Print Date for Little Dead Red!

The publisher assured me that Little Dead Red and Other Stories will be printed by June 29. That’s this week, you guys! That’s this very week! I have a very scary sedation appointment for my sweet son the day before (Williams Syndrome/autism make everything difficult) so holding this hot little number in my hands will make it all worth it. … Read More

Christmas Gifts for Children with Special Needs

This is a toughie. It can be downright hard, because there are so many emotions tied up with the holidays. We have expectations. Christmas is supposed to be a time where we express our love and gifts are a way we do that. What if the child, who has special needs, doesn’t like their gift? What if they don’t play … Read More

The Thing No Parent Wants To Think Of

Comfortable? Not at all. Necessary? Absolutely. It’s something that my husband and I have discussed for a long time. Niko is friendly, gregarious, and just as apt to sit on somebody’s lap now as he was when he was two years old. Kisses from a toddler are darling. From a teenager who can’t read the situation? Not so much. And … Read More

A Different Kind of Christmas Present

Niko, my darling boy, is 13 this year. He has Williams Syndrome, and like a lot of kiddos with WS, he’s difficult to buy for. One year he asked for an escalator, and Santa pulled a few tricks out of his bag for that one. He doesn’t attach to typical things, generally. He doesn’t particularly care about gifts, and that … Read More