What This Abused Man And My Son Have In Common

There’s a video going around. I won’t post it, but you know the one. A couple of teens beat up a mentally disabled man in Newark, Delaware. They knock him to the ground. Hurt him badly. That man on the ground is Coran. He has Williams Syndrome, just like my son. Here is our story. Here’s more information on Williams. … Read More

Preparing Your Child with Special Needs for School

This is an old blog post and Niko is now in high school, but it’s still relevant. As school time rolls around, there are always things we can do to help the transitions become easier. Happy school year!  I can’t tell you the tears, both his and mine, that have ensued because of new schools. This is my darling Niko. … Read More

My Interview With Zombiepalooza!

Hang out with the epic Zombiepalooza show! My portion starts an hour into the show, and runs for about 50 minutes. I really had a lot of fun. 🙂 You can watch the video here. Jackie and crew really work hard to put together something special. Thank you so much, you guys!  

May is Williams Syndrome Awareness Month

Most of you are familiar with the fact that my 11 year old son has Williams Syndrome. It’s an exceptionally intricate genetic syndrome that affects so many things about him. His heart. His mental capabilities. He’s going to middle school next year and he doesn’t have the dexterity to manipulate a button. But he loves. Oh, how he loves! I … Read More

Following the Nerd

It’s true, I am a nerd, but today we’re talking about the Following the Nerd Podcast. My dear friend Jay Faulkner (who once wrote an introduction describing our bromance on my “Let It Fall” guest post on his blog for Rare Disease Day) interviewed me for his radio show in Ireland. It was so much fun! If you’d like to … Read More

Hello From the IMC Unit!

We’ve been hit by a plague that took us down one by one. I spent two days in bed, physically unable to get out. The kiddos dropped like flies. So did my husband. We were attacked by Pestilence Pony. Littlest is currently in the IMC unit at our hospital with pneumonia. They’re having difficulty stabilizing her oxygen levels and her … Read More

The Dragon Takes a Wife

  The Vegas Valley Book Festival was fun! A lot of people came out. We represented the HWA, sold a few books, and I drank a LOT of Diet Pepsi. But my favorite part? Once upon a time, when Niko was a little boy, we were on the dialysis floor. He wasn’t having dialysis himself, but received a pamidronate treatment … Read More

The Girl With Hamburger Bun Eyes

My son is absolutely beautiful.  He just had a growth spurt.  He’s stringing more words together than ever.  He has Williams Syndrome.  He’s such a joy. The other day he was smiling and touching my eyes.  “Mommy’s eyes,” he said.  His face lit up as he thought about one of his favorite things.  “Hamburger buns.  Mommy’s hamburger bun eyes.” There … Read More

Stop 3: The SFWA Blog

One of my goals was to join the Science Fiction and Fantasy Writers of America, or the SFWA. It took a lot of hard work to become a member, and many of my writing goals are still SFWA oriented. For the third stop of the Beautiful Sorrows blog tour, I conrtibuted a post titled “Define Me: The Role of Changelings … Read More

Is This…Happiness?

  Oh, my darlings. My dear ones.  I have been far busier than I have ever been. Last night I laid everything out for my writing group, whose eyes grew wider and wider and I continued without taking a breath. “And I’m almost caught up on anthologies, but of course I still have the main novel and the book launch … Read More