A Kinder, Gentler First Aid Kit

I’ve told you about the Frontier Girls, which is similar to the Girl Scouts. Both of my daughters participate and they love it! I can’t say enough about our leader, who takes my breath away. She’s Wonder Woman. They had a first aid day on Saturday, spending four hours learning things like CPR, etc. One of the requirements is to … Read More

A Veterans Day Bus Ride

My son Niko, who has Williams Syndrome, has a few fixations, Washers and dryers, for example. Listening to the same song over and over. Hotels and buses. About six months ago, we promised we’d go on a public bus in November. He’s been looking forward to it for months, and has asked about it several times every day. (Anybody familiar … Read More

Frontier Girls and Williams Syndrome

My daughters are members of Frontier Girls, which is similar to Girl Scouts. They earn badges, do activities, and apparently surprise their mother. This summer Niko and I came to two meetings and taught the girls about Williams Syndrome. We shared this short video.  We talked about several of the WS characteristics. The girls asked Niko and I questions. It … Read More

Awkward Conversations with Geeky Writers: My Bloody Valentine Edition

Happy Friday the 13th, friends! Why don’t you spend that glorious day with the Geeky Writer’s crew? We’re having our first broadcast of the year, and you’re invited to participate! Ask us questions on the Facebook page and we’ll answer via live (and usually embarrassing) broadcast. Spend Valentine’s Eve with your four bloody Valentines. I’ll let Todd tell you the … Read More

Preparing Your Child with Special Needs for School

This is an old blog post and Niko is now in high school, but it’s still relevant. As school time rolls around, there are always things we can do to help the transitions become easier. Happy school year!  I can’t tell you the tears, both his and mine, that have ensued because of new schools. This is my darling Niko. … Read More

May is Williams Syndrome Awareness Month

Most of you are familiar with the fact that my 11 year old son has Williams Syndrome. It’s an exceptionally intricate genetic syndrome that affects so many things about him. His heart. His mental capabilities. He’s going to middle school next year and he doesn’t have the dexterity to manipulate a button. But he loves. Oh, how he loves! I … Read More

So I Ran Away.

A few days ago. It had been one of those days. Those weeks. Those months. And I snapped. I needed out. My husband came home from work and I was clawing at the door, saying I was sorry but I needed to step out for a few hours and I loved him and I’d back after the kids were in … Read More

The Girl With Hamburger Bun Eyes

My son is absolutely beautiful.  He just had a growth spurt.  He’s stringing more words together than ever.  He has Williams Syndrome.  He’s such a joy. The other day he was smiling and touching my eyes.  “Mommy’s eyes,” he said.  His face lit up as he thought about one of his favorite things.  “Hamburger buns.  Mommy’s hamburger bun eyes.” There … Read More

So The Police Show Up With My Eight-Year-Old Son…

Sounds like a bad joke, right?  Only it isn’t.  Through a series of miscommunications and things that would be heartbreakingly comic if I was watching it on TV, my son ended up freaking out on the school bus.  So much so that the school police were called.  My car had mysteriously died this morning, my baby hadn’t slept all day and … Read More

Interviews

Mercedes M. Yardley at Zombiepalooza Radio Live My Space: Mercedes M. Yardley in Desert Companion Women in Horror Month- An Interview with Mercedes M. Yardley by the HWA. Reading: TIH: Luna e Volk by Mercedes M. Yardley on This is Horror TIH 120: Mercedes M Yardley on Gamut, Rejections, and Fairy Tales by This is Horror TIH 119: Mercedes M. … Read More