How Facebook Helped Me Find My Missing Son

I’ll tell you straight up that he wasn’t missing for long, about 20 minutes, and he was returned safely.  But I died a little during those 20 minutes.  I didn’t know a heart could stop beating for that long and still let somebody survive, because I felt like it didn’t beat again until he was found. Most of you are … Read More

Is Strapping The Boy Down Really The Answer? Apparently So.

This is my kidlet. He’s nine, he’s frickin’ adorable, he has Williams Syndrome, and he’s unruly on the bus.  He just can’t sit still.  Last year the bus had an aide and that was all that was needed, but this year transportation has gone completely insane.  The budget cuts are astronomical. It’s impossible to get an aide for him; I … Read More

Warping Your Children on MOTHER’S DAY!

Which is even better than warping them any other day of the year, except maybe on their birthdays. Bwa ha ha! Mother’s Day was very bittersweet this year.  I was able to enjoy my precious children (who were obviously possessed by imps today.  Sweet and adorable they were NOT, at least until after nap time).  That was very sweet.  But I … Read More

Let It Fall: A Guest Post About Coping With A Diagnosis

Did you know that February 29 is Rare Disease Day?  It’s also Jay Faulkner’s birthday.  Jay is a family man, editor, and friend who allowed me to do a guest post on his blog to raise rare disease awareness.  I’ll actually have a few posts there through the month, since my family and I seem to constantly hit the rare disease jackpot.  … Read More

So The Police Show Up With My Eight-Year-Old Son…

Sounds like a bad joke, right?  Only it isn’t.  Through a series of miscommunications and things that would be heartbreakingly comic if I was watching it on TV, my son ended up freaking out on the school bus.  So much so that the school police were called.  My car had mysteriously died this morning, my baby hadn’t slept all day and … Read More

Writing The Hard Stuff

I just finished watching “The Stranger Beside Me”, a movie made from Ann Rule’s book of the same name.  I read the book years ago and loved it.  If this title is new to you, then run yourself right down to the bookstore and pick it up. It tells about Ann’s struggle to become a true crime writer while a … Read More

Guest Post: “Why I Hate The ‘R’ Word” by N. Paslay

Let me introduce you to my writer friend and fellow Williams Syndrome mother, N. Paslay. She wrote an essay that struck deep into my heart. I’m grateful that she allowed me permission to share her words here. I cringe whenever I hear this word, precisely for the reasons that she so eloquently states. Please, let’s realizes there are consequences to … Read More

WIP Wednesday: The Gauntlet is Thrown

  Wow, and it was thrown in  a big way.  My goal is to have my Williams Project in the hands of Mr. Agenty Man J by November first.  This gives me a concrete deadline as well as clearing my plate for my fifth NaNoWriMo, yeah?  I can totally do it.  First I have to take all of my separate … Read More

Why Focus on the Can’ts?

Hello.  This is the face of a disability.  I think that it’s pretty cute. My son Niko has Williams Syndrome.  He was diagnosed when he was about a year old.  Williams is becoming more common, but when he was diagnosed, we hadn’t heard of it.  It was a crazy mystery that messed with his genes.  He had heart problems.  He … Read More